POLICY

NSGC Position Statements reflect NSGC's organizational positions on specific public policy topics and guide our communications with policymakers, the media and the general public. Position statements are concrete applications of the Society's Code of Ethics and other official documents and are circulated for member comment prior to adoption. Adoption requires majority vote by the NSGC Board of Directors.

Current Position Statements

Access to Reproductive Healthcare

Advocating for Access to Genetic Counselors

At-Home Genetic Testing

Blood Spot Storage and Use

Clinical Data Sharing

Confronting Racism, Oppression, & Inequity in Genetic & Genomic Medicine

Disability

Distinguishing Sex and Gender to Reduce Harm

Family Health History

Genetic Testing of Children in the Adoption Process

Genetic Testing of Minors for Adult-Onset Conditions

Human Gene Patenting

Human Germline Editing

Newborn Screening

Prenatal Cell-Free DNA Screening

Prenatal Testing for Adult-Onset Conditions

Raw Data

Regulation of Genetic Testing

Secondary and Incidental Findings in Genetic Testing

Use of Genetic Information in Insurance and Employment Decisions

Use of Multi-Gene Panel Tests

Workplace Wellness Programs

Joint Statements with Other Organizations

ASBrS-NSGC Joint Statement of Medical Societies Regarding Genetic Testing Requirements

Joint Statement in Support of COVID-19 Vaccine Mandates for All Health Care Workers

ASHG/ACMG/NSGC Joint Statement re: Supreme Court Decision on Dobbs v. Jackson Women’s Health Organization

Position Statements Endorsed by NSGC

American Society of Human Genetics Statement Regarding Concepts of “Good Genes” and Human Genetics

Joint Statement in Support of COVID-19 Vaccine Mandates for All Health Care Workers

NSGC Position Statement Process

NSGC members who wish to submit ideas for additional position statements may complete a Position Statement Proposal Form for the PSC's consideration.  Adoption of a position statement requires a majority vote by the NSGC Board of Directors. If you have additional questions, please contact PSC's Staff Liaison Juliet Sullivan, at jsullivan@nsgc.org.

Additionally, if you have comments or insights on an existing position statement, you can also reach out to Juliet Sullivan, at jsullivan@nsgc.org.

NSGC Public Comments

A list of recent NSGC public comments can be found by following this link to the Public Comments page.

Retired Position Statements

A list of recently retired NSGC position statements can be found on the Retired Position Statements page.