Committee Overview
The Position Statement Committee (PSC) evaluates and coordinates position statements that align with NSGC’s current Strategic Plan. The PSC is focused on issues other than the Access to Genetic Counselor Services Act, but aligns responses with efforts to advocate for passage of that legislation. The 2023 charges include:
- Provide an evaluation of the position statement development and review process developed in 2022, including any recommendations for modifications or refinements to the process moving forward.
- Evaluate NSGC’s existing position statements for alignment to the 2022-2024 Strategic Plan, also indicating position statements that do not specifically align.
- Complete work on any position statements started in 2022.
- Based on NSGC leadership outreach to the PSC, provide support for drafting responses to requests for comment/opportunities to provide input on policy and social justice issues affecting the delivery of genetic services or directly impacting the genetic counseling profession.
Position Statements
NSGC's Position Statements reflect concrete applications of the Society's Code of Ethics and other official documents. The PSC helps develop these statements according to NSGC’s Policy on Position Statements. NSGC members who wish to submit ideas for additional position statements may complete a Position Statement Proposal Form for the PSC's consideration. Adoption of a position statement requires a majority vote by the NSGC Board of Directors.
NSGC Position Statements
Legislative Fact Sheets
Hundreds of bills are introduced in the federal legislature every year, but only a small fraction are enacted. NSGC monitors and actively reviews policies that are likely to be or have been enacted AND may impact the genetic counseling profession and affect the delivery of genetic services. FAQs about such legislation are created as a resource for NSGC members.
21st Century Cures Act Final Rule FAQ
Public Policy and Advocacy Resources
NSGC members are actively involved in advocating for their patients every day. The Position Statement Committee encourages the general membership to actively participate in advocacy work outside of their roles within NSGC. The PSC has developed and collated resources around areas of interest such specific to genetic counselors.
NSGC's Public Comments
Access to Genetic Counselor Services Act
The PSC supports the Advocacy Coordinating Committee in their efforts in advocating for the federal bill. Learn more about the federal advocacy efforts and join in on the grassroots effort!
Federal Advocacy
2023 Position Statement Committee Members
Committee Leadership
Elise Sobotka, Chair
Jennifer Proffitt, Vice Chair
Chris Tan, Board Liaison
Kate Bonini, Immediate Past Chair
Committee Members
Ambreen Khan
Katy Skora
Kristen Miller
Priya Marathe
Rachel Evard
Rebecca Tryon
Sarah Walterman
Sofia Horan
Stephanie Harris