Advocate President’s Corner March 2025: Appreciation, Awareness, and Leadership Learnings

3.7.2025

My Symbiotic Role as Patient Advocate at the Aicardi-Goutiere Syndrome Advocacy Group

3.4.2025

As an Advocate with the Aicardi-Goutiere Syndrome Advocacy Group (AGSAA), I have had the opportunity to work with an amazing group of parents and caregivers who are dedicated advocates working alongside clinicians, researchers and scientists to improve the lives of people and families living ...

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It's Time to Start Trusting Our Disabled Genetic Counselors

2.28.2025

For Rare Disease Awareness Day, two genetic counselors with rare genetic conditions have one request: Please stop asking genetic counselors with disabilities if we are comfortable counseling patients with our own diagnoses.

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Is a Molecular Consultation Service Viable? My Experience in a Pathology Department

2.21.2025

As the first genetic counselor in pathology at Massachusetts General Hospital, Abby Finer helped launch a molecular consultation service tackling complex oncology cases. By streamlining care and addressing gaps in precision medicine, the service improved outcomes but faced challenges with billing ...

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