Clinical Data Sharing

11.25.2020

The National Society of Genetic Counselors (NSGC) encourages the sharing of de-identified clinical and genetic information acquired by clinicians and laboratories from individuals undergoing clinical genetic or genomic testing. 

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Use of Genetic Information in Insurance and Employment Decisions

11.5.2020

The National Society of Genetic Counselors (NSGC) believes that no individual should be discriminated against on the basis of genetic information obtained from genetic testing or family health history. NSGC supports the Genetic Information Nondiscrimination Act of 2008 (GINA)

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Raw Data

11.5.2020

The National Society of Genetic Counselors (NSGC) recommends that laboratories, healthcare providers, patients, and individuals seeking genetic testing consider and be informed of the risks, benefits, and limitations of obtaining, releasing, and/or sharing raw genetic and genomic data.

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NSGC President Gillian Hooker Interviewed on Spark Podcast

8.5.2020

NSGC President, Gillian Hooker, was interviewed by radio and podcast host Kellee Marlow about the exploding interest in genetic testing. Listen to the podcast HERE.

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At-Home Genetic Testing Position Statement

6.24.2019

The National Society of Genetic Counselors (NSGC) advises consumers to consider the risks, limitations, and psychological implications of genetic testing for themselves and their families before purchasing an at-home genetic test (i.e. direct-to consumer, consumer-directed, consumer initiated, etc)

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Human Gene Patenting

4.16.2019

The National Society of Genetic Counselors (NSGC) supports the U.S. Supreme Court's unanimous ruling in Association for Molecular Pathology v Myriad Genetics, Inc. which states that while synthetic complementary DNA is patent eligible, naturally occurring human DNA sequences may not be patented. 

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NSGC Media Placements from Q4 2018

1.29.2019

A Safe Prenatal Genetic Test Is Gaining Popularity with Young Moms-To-Be and Their Doctors - The Washington Post

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Genetic Testing of Children in the Adoption Process

10.9.2018

The National Society of Genetic Counselors (NSGC) supports collecting available health information (including medical, genetic, and family history) for children entering the adoption process.

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Human Cloning By Somatic Cell Nuclear Transfer (SCNT) For Reproductive or Therapeutic Purposes

4.23.2018

Cloning by somatic cell nuclear transfer (SCNT) involves replacing the nucleus of an egg cell with the nucleus of a somatic cell from a donor, to create a zygote with the same nuclear DNA as the donor.

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NSGC Responds to U.S. Food and Drug Administration Approval of Direct-to-Consumer Cancer Test that Reports Three BRCA Mutations

4.19.2018

The U.S. Food and Drug Administration approved the marketing of 23andMe Personal Genome Service Genetic Health Risk Report for BRCA1/BRCA2 on March 6, 2018. This is the first direct-to-consumer (DTC) test to report on three specific breast cancer gene mutations most common in people of Ashkenazi (Ea

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